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Monday, June 04, 2012

saturday

when saturday finally came i was releived.  after the friday night pukarama, i was like, i have got to feel better on saturday, right?  that night made me feel very much like the first night in the hospital after we had seamus - no sleep, everytime we were about to settle down there was more chaos.  i do think it was scarier with seamus then with my head tho.  something about a tiny baby!!!
the Micro Macro Plum XL
my surgeon came to see me on saturday and i was happy to see him.  we chit chatted some and he told me about the tumor board that i was going to be part of and how they would be figuring out my treatment plan.  he said he made a video of the surgery and he had to edit it.  i wondered to myself what he used as music for it.
the Coach2 - keeping me from getting pneumonia
i don't remember too much more of the day other than asking them to please not send me home.  they said no way, so i took a sigh of relief.  they said i had another day or more to go, which i was happy to hear because i was in no way ready to go after that night, again similar to when i had the breakdown at the hospital with seamus asking them to please not make me go home yet!
this is also the day that flowers started to arrive!  so many beautiful flowers, gifts and cards came while i was in the hosptial and in the days after when i got home.  each one took me by total surprise and i could not beleive all of the generosity, kind words and thoughts from the amazing people in my life.
i spent a lot of time laying around looking at the wall.  i had them keep my door open about a foot so i could stay in touch with what was going on in the "outside world". and there was a lot going on.  so many things that i had to ask the physician's assistant what they all were.
there was a crazy loud Mary Had a Little Lamb alarm that was constantly going off.  it was so loud!!  and it seemed like it was right outside my door.  apparently some of the patients have sensors on their beds and when they start to get out of bed the alarm goes off to tell everyone!  at one point christie asked me how i knew that i didn't have the alarm on my bed!  i didn't really know!
they also called code grey in the ER a lot.  they did this so often that i had a dream about codes.  there were hundreds of colors of codes in my dream.  i think it was inspired part by the code greys but also the long row of lead vests.  but code grey means something along the lines of someone trying to leave the hospital who is not of sound mind.  why i needed to hear it on floor 5 in the east tower, i don't know.
the last alarm was one that went off when certain patients were having seizures.  i was, and continue to be very lucky that i have not had any seizures. how scary!  but the floor had an epilepsy control room, it was full of all kinds of computers.  and epilepsy patients would come to the hospital for observation, trying to have a seizure while hooked up to everything so that the doctors and nurses could try to pinpoint exactly where it was coming from, or what might be causing it.  i was worried for those patients, but the nurse said they weren't necessarily in pain, not that having a seizure was pleasant, but she admired them for wanting to get better and for going through all of that to try to figure out.  every time that alarm went off, it was kind of scary though.
by the end of the day i started to feel better.  sheesh, friday really took it out of me, but heck i was like only 2 days after having brain surgery?  i certainly didn't feel like i had had brain surgery, that is for sure!!
for some reason, it wants to be on its side and i cant get it to sit up right.

1 comment:

Crazy Lady said...

Even for a sideways picture, that is pretty darn amazing. You look almost radiant. So glad you are doing well, thanks for sharing the stories!
Leslie